Acto Italia – Alleanza contro il Tumore Ovarico ETS

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About Us

Organization Description
Acto Italia ETS, established in 2010, is a patient advocacy group engaged in the prevention and care of all gynecological cancers and promotes the network of 7 regional Acto Associations in Italy, independently established and autonomous, in Piedmont, Lombardy, Veneto, Tuscany, Campania, Apulia and Sicily.
Acto mission is to improve awareness, to promote prevention and screening, to support equal access to care, to organize initiatives improving patient quality of life and to advocate for their rights.
Acto Italia was founded by a group of patients and doctors who realized that there was a big silence around that cancer and that it was necessary to spread awareness on this cancer and to give support to the patients, who at that time felt neglected.
In 2019, Acto Italia widened its activity to all gynecological cancers.
Year Founded
February 4, 2010
Organization Website
Languages Served
English, Italian

Contact Info

Location

Street Address
Via Mauro Macchi, 42
City
Milano
Country
Italy
Location of Organization
Europe
Via Mauro Macchi, 42

More info about Organization

Major recurring events hosted by the organization
InActo research on the knowledge, attitute and experience of patients about clinical trials (2019/2020)
Webinar cycles on scientific topics
Complimentary Oncoaestethic programmes
Complimentary exercise (walking) programmes (next flight in 2025)
Participation to the World Ovarian Cancer Day and the GO Day, Uterine Cancer Month, Cervical Cancer Month with events and webinars
Group support online with Psychoterapist and Psychiatrist
Acto Book Club: an online library suggesting books on cancer and care topics
Complimentary distribution of Patients' guides on cancers and other topics (psychology, nutrition, sexuality etc.) either digital or printed
Major awareness or communications campaigns and/or collaborations your organization is involved in
Participation with social media campaigns to the World Ovarian Cancer Day and the GO Day, Uterine Cancer Month, Cervical Cancer Month in January, Cervical Cancer elimination Day in November, HPV day in March, in cooperation with international advocacy groups (WOCC, ENGAGe, IGCS)
Realization of a White Paper on Ovarian Cancer "Cambiamo Rotta" presented at the Ministry of Health in Sept. 2023
Awareness campaign on BRCA mutation "Io scelgo di sapere" in 2015
Awareness campaign on how to talk about cancer "Le parole che vorrei"
Awarenes campaign on experience in the Hospital "L'ospedale che vorrei"
What description best describes your organization?
Patient Advocacy and/or Support Group
Number of Employees
1-5
Estimated number of patients and/or caregivers served annually
the Acto network had 1000 members, 140,000 web site users, 20,000 followers on FB and IG

More information about Area, Activity and Services

Cancer Disease(s) of Focus
All Gynecologic Cancers, Cervical Cancer, Ovarian Cancer, Uterine Cancer (including Endometrial), Vaginal Cancer, Vulvar Cancer
Domain
Raising Awareness, In person patient/survivor/caregiver support services, Written information/advice, Telephone information/advice, Online information, Counseling or psychological support, Nutritional support, Legal help, Sexuality support, Complementary therapies, Political lobbying, Funding research
Advocacy and Awareness Activities Interested In
Raising Cancer Awareness, Educational Activities, Community Organizing, Research Initiatives, Fundraising, Storytelling/Narratives, Government/Lobbying, Improving Access to Treatment Options, Survivorship support
Methods of Communication
Live Webinars, Telephone Service, Videos, Written Information
Member/Audience Type
Cancer Patients and Survivors, Patient Advocates, Family Members and/or Caregivers of Patients, Physicians (Cancer Specialists), Researchers and Scientists